Thursday, August 23, 2007

What Rocks? What Sucks?

What Sucks

The NHS, I don't care what people say about how privileged we are because it's free, (taxes d'oh!), I would rather sell all my internal organs to pay for care that treats my father like a human being. I have had a LOT to do with the medical profession on both sides of the coin and I have NEVER seen somebody treated so fucking disgustingly as Dad has been the last week, Taliban kidnappers would treat their captives better than that, he has been left to starve, dehydrate, freeze, sit in his own waste and vomit, propped up in a chair and left for 7 hours whilst exposed to all and sundry and yes, I'm taking the matter all the way to the top and if you don't agree with my opinion then keep quiet, cos I swear to god, I will set my guinea pig on your throat. (Angry? Much?)

I am still sick, well, I'm not so sure I'm actually sick sick, but more showing signs of stress physically rather that mentally. I can feel fine one minute, then talk to mum or dwell too much about Dad and BOOM, I'm suddenly violently throwing up, shaking and sweating. Resting has not helped, I've had one night of sleep in 5 days (6 hours), so I'm going back to being with him from tomorrow, I sleep better when I've been around him and I have the rest of my life to be sick, I don't have the rest of my life to be with Dad.

That I was finally offered a bungalow but it's not the right time, if it was exactly what I wanted I would probably go for it, but it would be settling for second best in so many ways.

Western Electricity Distribution. I've had more power cuts in the last week than I would have if living in the mountains of Bolivia. There are huge holes in the road everywhere and the constant drilling, oh my god the drilling, *brrrrrrrrrrrrrr* *brrrrrrrrrrrrrrrr* fucking *brrrrrrrrrrrrrrrrrrrrr!!*

What Rocks

All the loving from the internet, thank you guys, you rock my socks.

The Hospice dad transferred to this morning. It's like a hotel. Lovely room with en suite, private patio doors and patio area, beautiful gardens full of rabbits, birds and deer. The most amazing nursing care giving with complete compassion and buckets of TLC. A doctor who sits down and actually talks openly, asking the patient and family what they need and promising to deliver it. Edible food, of which they will cook Dad whatever he wants to encourage him to eat, nothing is too much to ask. Reclining chairs in his bedroom for mum and I, a relatives kitchen with supplies to help ourselves too.

Synchronised crying on the phone with mum in relief. We can finally leave dad at the end of the day and know he is being treated with the respect a human being should, I just can't describe how comforted that makes me feel.

Receiving the most lovely personal email from Radio 1 DJ Edith Bowman on behalf of herself and her partner, the lead singer of the band Editors. The most touching surprise I've had in a long long time. Thank you my darling, you know who you are xx

Gaining an obsession with very loud t shirts and being able to justify ordering them online in the bucket loads because "I'm grieeeeving Mr Bank Manager, greeeeeiving, if I don't have that electric blue one with the pink splashes of paint, then I will curl up in the corner of your office and rock manically, where's your compassion?! Give me some money!!"

Wearing said t shirts when seeing Rach, simply because you know how much she hates them and there's nothing like embarrassing your best mate in public.

Getting a three hour guided tour of London by phone. She was alone and in fear of being mugged, (we live in secluded Somerset, anywhere further than Bristol is on par with Colombia). I got a plastic Beef Eater out of the favour.

Not being able to eat anything without throwing up, drastic I know, but oh so much less effort than a diet. Don't lecture me, I'm not being serious, it's a bad, bad thing .........kinda.

Will you look at that, more Rocks than Sucks, that's gotta be improvement!

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Can't be with him and hating it

He's being transferred to St Margaret's Hospice in the next couple of days.

I still have the bastard lurgy and my brain hasn't allowed me to sleep for 48 hours.

I wanna see my daddy damn it!


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Abuseanurse.com

Hi everyone, I won't be spelling checking, comma checking, grammar checking, cos I is a badass muvva.

Dad's pulled through another major hiccup. He had a stomach drain put in on Friday and they drained 9 litres. I still can't get my head around that, no wonder he had a distended belly.

He is still very poorly, and his lung scans are not good, we are not sure if it's fluid or pneumonia.

He is still incoherent and hallucinating and is on a anti sickness pump, but isn't suffering any of these things half as much as he was up until yesterday.

We had some major issues with the nursing care, I found him on Thursday naked from the waist down, not covered up, hanging off the bed (he is supposed to have the sides up because he has been throwing himself around with the hallucinations), covered in new and old vomit, his bottom sheet on the floor so he was lying on the mattress. I think that was the most distressing day for me so far.

It's all sorted now, I rang the oncologist and the palliative care team and told them he had been thrown in the corner like a dog and I created so much hell on the ward that they threatened to call security Thankfully the oncology team came down and gave the ward a roasting too, they didn't even know Dad had been admitted, he was put on a chest ward and nobody bothered to tell the cancer team, they also would have had no idea he had terminal cancer until we told them, because Dads notes never came for 48 hours!!

Breeeeath Jilly Breeeeath.

Anyway, kicking up a stink worked, because since then they have been pretty good.

We hope to get some major answers to questions today, we are confused about the way things have been going for dad, we were told he would be comfortable and have a decent quality of life, but that just hasn't happened over the last couple of months. They either need to step up the drugs and get on top of these symptoms, like the fluid, sooner, or be straight with us if there is nothing they can do and this is the way it has to be, mum and I feel we are struggling in the dark at the moment.

I can't see him today because I have the lurgy, bah and double bah.

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Normal service will resume.... ummm... sometime.

Dad is back in the hospital. Bah.

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"Me do anything for cookie"

Today's blog entry was bought to you by the words;

POWER AND CUT
AND THE NUMBER 8.

"ONE hour without electricity, HA HA HARRR"
"TWO hours without electricity, HA HA HARRR"
"THREE hours without electricity, HA HA HARRR"
"FOUR hours without electricity, HA HA HARRR"
"FIVE hours without electricity, HA HA HARRR"
"SIX hours without electricity, HA HA HARRR"
"SEVEN hours without electricity, HA HA HARRR"
"EIGHT hours without electricity, HA HA HARRR"

This blog entry is a production of the 'thawing freezer items' workshop.

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What happened to the day spa?

I had a day off nursing duty. Did you sleep in Jilly? Enjoy a leisurely morning reading the independent followed by an afternoon Danielle Steele movie special on TMF? Why no, no I didn't as a matter of fact, I went to replenish my cupboards so that I can now eat proper food when I come home of an evening, instead of the stray noodles that I've been scraping from the back of the larder.

Seriously, this is the first time in over 2 months that I have had any substantial foodstuffs in the kitchen, hence why I went for superfoods, for the energy, because it is lacking. Greatly.
I also got very wet, due to the thunder storm that lasted all afternoon. In August. Because this is Britain.

I can not believe how quiet the road is behind the flat. As I've mentioned before, I live near a slaughter house, well, they like to call it a 'meat factory', but I know they murder in there, I feel the desperation every time a lorry load of doe eyed cows whizz past my door, tongues probing through the trailer grids, moo'ing their last moos.

Anyway, as I was saying, the road is unusually quiet at the moment. No cattle trailers juganauting along every 5 minutes, (is juganauting a word? I don't care if it isn't, I like it), spewing cow piss and dung all over the road every time they turn a corner. This is due to the foot and mouth outbreak of course, non transportation of hoofed animals, which means my bed is temporary a non vibrating one, because seriously, for the last 7 years I have literally been rock and rolled all night long.

So, after visiting the supermarket, chemist, recycling tip (my parents have finally let go of their VHS tapes, there were almost tears) and a good old cupboard clear out followed by guinea pig cage clean, I did take time to annoy the rodent with the camera. She has been so neglected lately that when I come home she follows me everywhere, constantly squeaking. The guilt of a working mother is a torturous one.

Back into the nursing uniform tomorrow, I hear today was a better day, lets home it continues.




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Not the best of days

Dad's legs are infected and weeping. We are having to wash and apply cream half a dozen times a day, you can imagine how much he loves that.

I had a call from Grandad's warden early this morning, he had a fall and cut his shoulder and is back in hospital. In my haste to get out of the house to get too a tearful mum before 8am, which was the time I convinced myself she would internally combust, I fell in the bath and walloped my arm, I can't straighten it and it hurts like a bastard, but I simply don't have time to get it looked at, I figure if it was broken I would have passed out by now!

I got in a hour ago, had a bath and am slowly getting pissed before I roll into bed. Not that I'm turning to the drink or anything, I am simply trying to get more sleep, I'll try anything for more than 4 hours of kip, even if it involves sacrificing a virgin, bring it on.

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I never thought

I never thought I would be constantly cleaning up after my father, (he has gut/intestinal Carcinoid, I don't think I need to elaborate), whilst my mother is stifling her sobs in the bathroom because shes just about given as much as she can give.

I never thought I would hold a woman who never cries, everyday for two weeks whilst she sobs her heart out.

I never thought I would have to 'have a chat' with my father about the way he is treating my mother right now, about how I know it's the cancer and the drugs and I understand he is angry and has every right to be, but can he please try to not shout at her, especially whilst using such hurtful words.

I never thought I would feel the guilt that I feel when I leave their house at the end of the day to return to mine.

I never thought I would feel the dread that I feel when I get in the car each morning to drive to theirs.

I never thought that even though I see my father everyday, his sunken yellow face still shocks me every time.

I never thought my father would want to close himself away from his family to obsessively watch TV in the bedroom.

I never thought my mother would be too terrified to speak to her husband for fear of his response.

I never thought I would feel like I am solely propping my mother up and if I were to walk away she would shatter into 1000 pieces.

I never thought I would have such an intense feeling of wanting to make everything alright and feel like a failure because I can't.

I never thought I would go behind my parents back and contact a professional because I am so worried about their relationship/mental health only to be met by the usual NHS brick wall.

I never thought I would be able to cope with the things that are going on right now.

I never gave myself credit.

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Dead rabbit walking

*brr brr* *brr brr* *brr..

"Uh huh?"

"Jilly?"

"Rach? It's the middle of the night!"

"I don't know what to do"

"Huh?"

"Somethings wrong with the rabbit, it's...... stiff"

*silence*

"Jilly?"

"Um Yeah, yeah, I'm here. Errrr, I think it's probably dead Rach"

"Oh god, I KNEW it, what am I going to do?"

"Bury it?"

"But it's stiff!"

*silence*

"Jilly!, help me out here!"

"Well what do you want ME to do for god's sake!"

"I can't touch it, it's........ stiff!"

"Fine, I'll be over later. I'm going back to sleep"

"Yeah, me too"

"Oh and Rach, just one thing"

"Yeah?"

"I'm coming for you Rachel and this time I'll get you, Gage and I will get you for letting us die!"

"You little shit!"

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